MS News

Gilenya Approved by FDA as First DMT for Children, Ages 10 and Older, with Relapsing MS

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Gilenya Approved by FDA as First DMT for Children, Ages 10 and Older, with Relapsing MS

 

MAY 15, 2015 BY ALICE MELAO

 

Gilenya (fingolimod) has become the first disease-modifying therapy approved by the U.S. Food and Drug Administration (FDA) to treat children and adolescents with relapsing forms of multiple sclerosis (MS).

This expanded approval allows Gilenya, previously indicated for adults patients 18 or older, to be used to treat pediatric relapsing MS patients starting at age 10.

The FDA decision was supported by data from the ongoing Phase 3 PARADIGMS study (NCT01892722) comparing the safety and effectiveness of Gilenya to Avonex (interferon beta-1a) in these young patients.


FDA Clears Mobile App for Use with L300 Go System Created to Help with Walking and Gait

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FDA Clears Mobile App for Use with L300 Go System Created to Help with Walking and Gait

APRIL 2, 2018   Carolina Henriques  BY CAROLINA HENRIQUES

The U.S. Food and Drug Administration (FDA) recently cleared the myBioness mobile app, designed by Bioness, to be used with the L300 Go System to improve muscle strength in patients with multiple sclerosis (MS) or other conditions that affect walking.

The L300 Go System is approved to help adults and children with foot drop, and to assist adults with knee flexion or extension problems caused by muscle weakness related to upper motor neuron disease or injury. It is the first electrical stimulation device to offer 3-D motion detection of gait and muscle activation.


Stem Cell Transplant for MS Shows Promise

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Stem Cell Transplant for MS Shows Promise

March 19, 2018 -- A stem cell transplant may be an effective treatment for multiple sclerosis, an international study suggests.

The treatment involves using cancer drugs to decimate a patient's immune system and then restarting it with a stem cell transplant, BBC News reported.

The study included 100 patients in the United States, England, Sweden and Brazil with relapsing remitting MS, in which attacks are followed by periods of remission.


Satori

By Sean Jezewski

The morning of the swim, I had to make the call if I was going to make the

attempt.

Leading up to the swim, I was pretty anxious. My body had been sick and I was trying my hardest to give it what it needed. I did a swim outside the cove on Wednesday, but Thursday and Friday I was feeling woozy again.

I called a friend the morning of the swim. He asked how I felt about it. I was actually pretty happy, but stuck in my head.

I was genuinely happy with either outcome, but I was still hung up on which one was better, or which one was ‘right’. Which is funny. There was no right choice. There was only choice.


Nutrition and MS

By: Sarah Skolnik

 

Living with MS is difficult enough, let alone living with MS and trying to follow what is and is not good for you considering there are many studies and articles that constantly contradict one another. In order to navigate certain nutrition facts, MS Cure Fund paired up with a nutritionist in Southern California, Sarah Skolnik (Nutrition by Sarah), to provide some snacks with insight.


Registering on the New Website!

As you have probably already heard, our NEW WEBSITE will officially launch on July 1!

Many of you have already registered, and we are so excited for you to experience this with us. For those that haven’t registered, here are some step-by-step instructions (with pictures!) to help make this transition a little easier.


MS and Water Therapy

by: Kara Friesen

Water therapy is something that both MS and non-MS patients can participate in – and you don’t even have to be a swimmer! Many communities offer aquatic classes that focus more on stretching and balancing, as opposed to actual swimming. Check your local aquatic center to see what they offer!


Traveling

by: Kara Friesen

From remembering your passport, to making sure you actually packed your toothpaste, traveling can stressful on it’s own. Combine it with the fact that you have MS, and the stress factor can be even higher!

Traveling and dealing with MS has had it’s fair share of trial and error. There are things now that I make sure I don’t forget, and things I make sure I have prepared, so that I’m not scrambling.


Escape From Alcatraz

By Sean Jezewski

Today I’m announcing my intent to swim from Alcatraz on 7/30 without a wetsuit.

Also. I don’t know what normal is anymore. And that’s a beautiful thing. Let me backup.

 


MS and being a mom!

By: Kara Friesen

I was diagnosed with Multiple Sclerosis when I was 23 years old. I had a new baby and was already dealing with some post partum depression, so the diagnosis really threw me for a loop! I didn’t know what to do. On one hand, I felt relieved that I was able to receive a diagnosis and have an answer to the strange symptoms I was experiencing, but on the other hand, I was so terrified! Could I still be a mom? Could I be a GOOD mom?