As Kahn Academy is known for making learning more effective through simplified methodology – so too have they brilliantly made MS understandable in a 7 part series of videos
Hi Maggie,
How did you get involved with Equine therapy? Can you tell me the best way to get active in my community?
Anonymous
There are more than a dozen treatment options for patients with relapsing multiple sclerosis and so far none for the progressive form. Why that is and what can be done to change that are two of the biggest challenges in the field today.
Patricia Coyle, MD, from Stony Brook University discussed what progress is being made in the field of progressive multiple sclerosis, the different forms doctors are treating, and other challenges they face during the annual ACTRIMS conference in New Orleans.
Boston, Massachusetts – March 31, 2016 – The International Pediatric Multiple Sclerosis Study Group (IPMSSG) has formalized a three-year partnership with MS Cure Fund, Inc., a Boston based 501(c)3 nonprofit patient advocacy organization for people living with multiple sclerosis.
A “Thriving Beyond MS©” Featured Story
Anna C. thrives beyond MS by finding new ways to stay active and following her passions:
Hi, my name is Anna. I happen to have Primary Progressive Multiple Sclerosis. As of this date, there are not too many options for me to slow down the progression of this monster disease. Instead of sulking and getting depressed, I choose to live my life to the fullest and thumb my nose to MS.
A “Thriving Beyond MS©” Featured Story
Marisa B. just considers MS another mountain to climb.
Everyone Has Their Mountain
Thirteen years ago, I was told those four words that changed my life: “You have Multiple Sclerosis.”
I had no idea what MS was, nor did I know anyone with MS. There was tingling in my arms, I felt fatigued a lot, and my right leg would drag so badly that I had trouble crossing a room. My symptoms would come and go, but I never knew when I would have another relapse or how long it would last. I had a 2-year-old child and feared how I would be able to take care of myself and my son.
A “Thriving Beyond MS©” Featured Story
Colleen P.’s relationship with her son helps her thrive beyond MS:
My name is Colleen. I am 31 years old and I have relapsing remitting multiple sclerosis. I was diagnosed in 2007 at the age of 22, and my son was 3 years old at the time. Here is my thriving story:
MS has changed my life for the better because I am now connected to a bunch of people that also have MS. Either as Facebook friends, or meeting people at MS events, I love the connection I have with other people that know what I’m going through. I also belong to a support group for MS that meets once a month.
A “Thriving Beyond MS©” Featured Story
Rick C. shares how he has biking, his family and writing to help him thrive beyond his MS diagnosis:
When it comes to how I “thrive with MS”, there is no single answer. God’s love, the support of my family, having a creative outlet (writing, in my case) and my support group are all key parts of what has kept me going since my diagnosis. None of those, however, translates well pictorially so I’ll talk about my other passion, one that has become an integral part of my therapy: bicycling.
While the idea of “MS Awareness” sounds like a good and laudable goal, we at MS Cure Fund wish it were more about MS understanding!
How many of you, once you have shared having multiple sclerosis with a family member, friend or colleague, have had the response of “oh but you look fine”, or “you’re not sick, you look perfectly normal.” These are very hurtful responses that seem complimentary to the person saying them. He or she thinks they are speaking well of you, not knowing the biting pain the comes as a visceral reaction to such statements.
2.28.16 ACTRIMS, New Orleanse, LA
As the first medication designed to treat primary progressive multiple sclerosis moves closer to the market there are still many questions about how effective it will be and what other treatment options may look like in the future.